Lupus Foundatio Newsletter for April 25, 2011
Lupus Living: Overlap Diseases, Lupus and Sleep, a Multicultural Look at Health, and more
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Musician and Philanthropist Julian Lennon to Elevate the Global Profile of Lupus
Musician and philanthropist Julian Lennon has been named Global Ambassador by the Lupus Foundation of America’s (LFA) National Board of Directors. The role of the Global Ambassador is to elevate lupus on the world’s health agenda, and increase awareness of the needs of the more than 5 million people living with lupus and their families around the world.
Read more about Julian's role.
15 Questions with Mrs. Gina Cortese-Shipley – “Exercising and Staying Fit with Lupus"
Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity with the knowledge and support of their doctor. For May, the LFA invites you to join us for the "Exercising and Staying Fit with Lupus " Q&A with guest expert Mrs. Gina Cortese-Shipley. This is your opportunity to ask questions and learn from an expert.
Submit your questions to our lupus experts by May 9. Answers will be posted to the LFA website by May 18th. If you have a question about lupus that is not associated with this month’s topic, we invite you to submit your inquiry to our LFA Health Educators and your question will be answered as soon as possible.
Review transcripts from our previous 15 Questions and Web Chats
Learn more about 15 Questions
Join the Lupus Foundation of America Walk for Lupus Now®
The Spring Walk for Lupus Now® season is in full swing! Join thousands of walkers in nearly 70 cities across the nation to raise urgently needed funds for life-saving research and support programs that help the estimated 1.5 million Americans who are affected by this unpredictable and potentially life-threatening disease.
Find a walk near you today
Lupus and Overlap Diseases
The connective tissue diseases are a family of closely related but distinctly unique disorders. They include: rheumatoid arthritis (RA), systemic lupus erythematosus (SLE or lupus), polymyositis-dermatomyositis (PM-DM), systemic sclerosis (SSc or scleroderma), Sjogren's syndrome (SS) and various forms of vasculitis.
Although lupus most often occurs alone, many people with lupus also have symptoms characteristic of one or more of the other connective tissue diseases. In this circumstance, a physician may use the term "overlap" to describe the illness. There are several well-recognized overlaps that may affect people with lupus.
Learn more with the resources below:
Lupus and overlap diseases
Lupus and Sjögren's syndrome
From Lupus Now magazine: Practical Tips for Living with Sjögren’s and Raynaud’s
A Multicultural Look at Health
Cultural backgrounds influence how people access and use the healthcare system, which is particularly relevant to lupus because the disease especially targets women of color. In the United States, lupus is two to three times more prevalent among Asians, African Americans, Hispanics, and Native Americans, including people in Hawaii and Alaska.
Read more Cultural Communications: A Multicultural Look at Health & Wellness
Lupus and Sleep
For March, the LFA invited you to join us for the 15 questions topic "Restful Sleep with Lupus" with Dr. Smith. This was your opportunity to ask questions and learn from an expert.
Read his answers now
From Fall 2010 Issue of Lupus Now: Sleep Easy - Why Sleep Is Critical When You Have Lupus
Create a Page of Hope
Celebrate a special occasion or honor someone who has been effected by lupus, while you help find a cure. Celebrate an anniversary, birthday, or even Lupus Awareness Month in May by creating a Page of Hope personal fundraising page.
You can easily create and customize a Page of Hope, then invite family and friends to visit and make a gift. It’s a powerful way to make a difference and deliver a message of Hope.
Create a Page of Hope today.
Lupus Foundation of America and RN.com Launch New Lupus Education Program
LFA’s Medical-Scientific Advisory Council Spotlight: Dr. Gary Gilkeson
Guest Blog: My Decision to Join a Clinical Trial
Learn more about clinical trials – visit the LFA’s Center for Clinical Trials Education
Register for the Lupus Research Registry - receive email alerts of clinical trials in their area
Make a gift now to support the LFA
May is Lupus Awareness Month. Band Together for Lupus and order your products in time for Lupus Awareness Month.
Spring 2011 Cover Story: Family Ties – Designer Eduardo Xol creates Zen retreat for his sister with lupus
Subscribe to Lupus Now
The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
Federal employees, military personnel and postal workers can donate to the Lupus Foundation of America through the Combined Federal Campaign. Designate CFC Agency #10566. Learn more >
About LFA
Privacy Policy
Contact Us
Update Preferences
Unsubscribe
1 recipientsCC: recipientsYou More
Hide Details FROM:Lupus Foundation of America, Inc
Musician and Philanthropist Julian Lennon to Elevate the Global Profile of Lupus
Musician and philanthropist Julian Lennon has been named Global Ambassador by the Lupus Foundation of America’s (LFA) National Board of Directors. The role of the Global Ambassador is to elevate lupus on the world’s health agenda, and increase awareness of the needs of the more than 5 million people living with lupus and their families around the world.
Read more about Julian's role.
15 Questions with Mrs. Gina Cortese-Shipley – “Exercising and Staying Fit with Lupus"
Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity with the knowledge and support of their doctor. For May, the LFA invites you to join us for the "Exercising and Staying Fit with Lupus " Q&A with guest expert Mrs. Gina Cortese-Shipley. This is your opportunity to ask questions and learn from an expert.
Submit your questions to our lupus experts by May 9. Answers will be posted to the LFA website by May 18th. If you have a question about lupus that is not associated with this month’s topic, we invite you to submit your inquiry to our LFA Health Educators and your question will be answered as soon as possible.
Review transcripts from our previous 15 Questions and Web Chats
Learn more about 15 Questions
Join the Lupus Foundation of America Walk for Lupus Now®
The Spring Walk for Lupus Now® season is in full swing! Join thousands of walkers in nearly 70 cities across the nation to raise urgently needed funds for life-saving research and support programs that help the estimated 1.5 million Americans who are affected by this unpredictable and potentially life-threatening disease.
Find a walk near you today
Lupus and Overlap Diseases
The connective tissue diseases are a family of closely related but distinctly unique disorders. They include: rheumatoid arthritis (RA), systemic lupus erythematosus (SLE or lupus), polymyositis-dermatomyositis (PM-DM), systemic sclerosis (SSc or scleroderma), Sjogren's syndrome (SS) and various forms of vasculitis.
Although lupus most often occurs alone, many people with lupus also have symptoms characteristic of one or more of the other connective tissue diseases. In this circumstance, a physician may use the term "overlap" to describe the illness. There are several well-recognized overlaps that may affect people with lupus.
Learn more with the resources below:
Lupus and overlap diseases
Lupus and Sjögren's syndrome
From Lupus Now magazine: Practical Tips for Living with Sjögren’s and Raynaud’s
A Multicultural Look at Health
Cultural backgrounds influence how people access and use the healthcare system, which is particularly relevant to lupus because the disease especially targets women of color. In the United States, lupus is two to three times more prevalent among Asians, African Americans, Hispanics, and Native Americans, including people in Hawaii and Alaska.
Read more Cultural Communications: A Multicultural Look at Health & Wellness
Lupus and Sleep
For March, the LFA invited you to join us for the 15 questions topic "Restful Sleep with Lupus" with Dr. Smith. This was your opportunity to ask questions and learn from an expert.
Read his answers now
From Fall 2010 Issue of Lupus Now: Sleep Easy - Why Sleep Is Critical When You Have Lupus
Create a Page of Hope
Celebrate a special occasion or honor someone who has been effected by lupus, while you help find a cure. Celebrate an anniversary, birthday, or even Lupus Awareness Month in May by creating a Page of Hope personal fundraising page.
You can easily create and customize a Page of Hope, then invite family and friends to visit and make a gift. It’s a powerful way to make a difference and deliver a message of Hope.
Create a Page of Hope today.
Lupus Foundation of America and RN.com Launch New Lupus Education Program
LFA’s Medical-Scientific Advisory Council Spotlight: Dr. Gary Gilkeson
Guest Blog: My Decision to Join a Clinical Trial
Learn more about clinical trials – visit the LFA’s Center for Clinical Trials Education
Register for the Lupus Research Registry - receive email alerts of clinical trials in their area
Make a gift now to support the LFA
May is Lupus Awareness Month. Band Together for Lupus and order your products in time for Lupus Awareness Month.
Spring 2011 Cover Story: Family Ties – Designer Eduardo Xol creates Zen retreat for his sister with lupus
Subscribe to Lupus Now
The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
Federal employees, military personnel and postal workers can donate to the Lupus Foundation of America through the Combined Federal Campaign. Designate CFC Agency #10566. Learn more >
About LFA
Privacy Policy
Contact Us
Update Preferences
Unsubscribe
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